January 23, 2018 |
NIH Makes Palliative Care More Attainable for Pediatric Patients and Their Families (VIDEO)
January 14, 2014  | 

Bethesda, MD - A campaign just launched by the National Institute of Nursing Research (NINR) aims to increase the use of palliative care — comprehensive treatment of the discomfort, symptoms, and stress of serious illness — for children with serious illness.

Palliative care can reduce a child’s pain, help manage other distressing symptoms, and provide important emotional support to the child and family throughout the course of an illness.

Research has shown that pediatric palliative care services may also increase overall satisfaction with care for patients and their families. Yet, many health care providers hesitate to recommend palliative care for their youngest patients, and parents and caregivers are often unaware of its benefits.

“Initiating palliative care conversations is often hard for both providers and families, especially in the pediatric setting,” said Dr. Patricia A. Grady, NINR director. “While it may not be an easy conversation, recommending palliative care to patients and families early can improve patient experiences with care. We hope this campaign and its resources will help ensure that palliative care is considered for every child and family navigating a serious illness.”

To develop the Palliative Care: Conversations Matter campaign NINR, a component of the National Institutes of Health, brought together parents and palliative care clinicians, scientists, and professionals to give their input and expertise on what they felt was needed in the field. Continue>

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